What I want people to realize in this is the fact that this journey is not an individual journey it is definitely a family experience.
How can I say that when I am not the one going through the pain the suffering the torture of this disease? Well I have struggled with this question for a very long time. I question my emotions, my status and my position in this journey! Constantly! Am I worthy? Do my feelings matter? Does anyone's feelings matter that this dreadful disease affects? I absolutely have to allow emotions from the family! Oh! And that's another taxing event! I change from caregiver to emotional supporter for others as well. So in an instant I can change from an emotional mess myself to a nurturing optimistic shoulder. IS THIS A GIFT? OR A CURSE?
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